Yes. But I promised... I promised him - his world would never be silent. - He would never...
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Augusto Odone:
You see, Michaela, it's as though he is trapped down in some dark cave. Because he's lost so much myelin, he can't find his way out. Now, we know his simple functions are intact. He breathes, he swallows, his heart beats. And from the outside world, he receives sensation. A touch, pain, cold. And here are the primal feelings. Fear, hunger, desire. While up here in the neocortex, the higher brain, locked here, are his reasoning, imagination, memory. The things that make us each ourselves. So how does he reach us? When a simple swallow is such a huge task? To find... To find the way, the path from his mind to the outside world is like willing himself through a brick wall. Michaela... Do you ever think that - maybe all this struggle, -it may have been for somebody else's kid? Michaela Odone:
Yes. But I promised... I promised him - his world would never be silent. - He would never be alone
You see, Michaela, it's as though he is trapped down in some dark cave. Because he's lost so much myelin, he can't find his way out. Now, we know his simple functions are intact. He breathes, he swallows, his heart beats. And from the outside world, he receives sensation. A touch, pain, cold. And here are the primal feelings. Fear, hunger, desire. While up here in the neocortex, the higher brain, locked here, are his reasoning, imagination, memory. The things that make us each ourselves. So how does he reach us? When a simple swallow is such a huge task? To find... To find the way, the path from his mind to the outside world is like willing himself through a brick wall. Michaela... Do you ever think that - maybe all this struggle, -it may have been for somebody else's kid? Michaela Odone:
Yes. But I promised... I promised him - his world would never be silent. - He would never be alone
Full Transcript
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Excuse me
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Are you saying that Lorenzo got this directly from me
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Well in the sense that A L D Is sex linked
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yes
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It goes from mother to son
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Then how did I get it
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The woman gets it from her mother
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If I inherited the defect why don't I have the disease
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No the woman is only the carrier nothing else
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but with each conception
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she has a 50 50 chance of passing on the defect
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Movie Summary
Lorenzo Odone, a Virginia 5-year-old, develops a degenerative nerve disease so rare that nobody is working on a cure, so his parents decide to immerse themselves in research and tackle the problem themselves.
Actors
Augusto Odone
Michaela Odone
