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They're groping in the dark
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When we first went to the Comoros, what did we do? We got to know the country, right? Yes...

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Augusto Odone: When we first went to the Comoros, what did we do? We got to know the country, right? Michaela Odone: Yes Augusto Odone: We studied, we got to know the language, resources, its law. We studied, right? We should threat Lorenzo's illness like another country. Michaela Odone: I don't quite see the analogy. Augusto Odone: All right, all right. ALD has many dimensions, right? Michaela Odone: Yes Augusto Odone: So, in order to understand it, we need to command genetics, biochemistry, microbiology, neurology, ology-ology. Michaela Odone: Augusto, we don't have time to go to medical school. Augusto Odone: Michaela, the doctors are in the dark. They're groping in the dark. The've got Lorenzo on a turvy-topsy diet. And that bloody immunosuppression is brutal and useless. Michaela, we should not have consigned him blindly into their hands. He should not suffer by our ignorance. We take responsibility. So... we read a little. And we go out and inform ourselves. Michaela Odone: But... to miss time with him while he can still speak to us... Augusto Odone: Yes, I know, I know. But he expects it of us.


Transcript

00:00:01.000 --> 00:00:02.855
They're groping in the dark
00:00:02.092 --> 00:00:05.822
They've got Lorenzo on a turvy topsy diet
00:00:05.896 --> 00:00:08.165
And that bloody immunosuppression
00:00:08.232 --> 00:00:11.001
it's brutal useless
00:00:11.081 --> 00:00:12.935
Michaela we should not
00:00:13.945 --> 00:00:16.481
have consigned him blindly into their hands
00:00:16.553 --> 00:00:20.099
He should not suffer by our ignorance
00:00:20.169 --> 00:00:22.405
We take responsibility
00:00:22.472 --> 00:00:25.009
so we read a little
00:00:25.016 --> 00:00:28.957
and we go out and inform ourselves hmm
00:00:29.001 --> 00:00:32.997
But to miss time with him
00:00:32.168 --> 00:00:35.648
while he can still speak to us Oh yes

Clip duration: 37 seconds
Views: 172
Timestamp in movie: 00h 40m 58s
Uploaded: 03 April, 2022
Genres: biography, drama
Summary: Lorenzo Odone, a Virginia 5-year-old, develops a degenerative nerve disease so rare that nobody is working on a cure, so his parents decide to immerse themselves in research and tackle the problem themselves.


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