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Why has it been so hard to figure out what's going on in patients like me?
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Unrest

Why has it been so hard to figure outwhat's going on in patients like me?

Unrest • 2017
Why has it been so hard to figure out
what's going on in patients like me?

Full Transcript

00:00:01.000 --> 00:00:05.088
Why has it been so hard to figure out what's going on in patients like me?
Duration
7 seconds
Views
24
Timestamp in Movie
01:07:52
Uploaded
Oct 29, 2025
Genres
documentary, drama, history
Production
N/A

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Movie Summary

When Harvard Ph.D. student Jennifer Brea is struck down by a fever that leaves her bedridden, she sets out on a virtual journey to document her story as she fights a disease that medicine forgot.
What's usually hard about a problem is that you often have to take - Unrest 00:10
What's usually hard about a problem is that you often h...
I look on trying to figure out if CFS as one of the most difficult things - Unrest 00:08
I look on trying to figure out if CFS as one of the most dif...
CFS is an extremely complicated disease involving the immune system - Unrest 00:10
CFS is an extremely complicated disease involving the immune...
We're studying a very small population of severely ill patients - Unrest 00:09
We're studying a very small population of severely ill ...
We're probably collecting more data on an individual - Unrest 00:08
We're probably collecting more data on an individual
I've teamed up with really superb scientists. Three of them have a Nobel Prize. - Unrest 00:07
I've teamed up with really superb scientists. Three of ...
In two/three months we'll have some data to sit at the table and look at- not publish- - Unrest 00:09
In two/three months we'll have some data to sit at the ...
Almost exclusively the organization that funds medical research - Unrest 00:08
Almost exclusively the organization that funds medical resea...
Chronic Fatigue Syndrome is the lowest funded of any major disease by a lot. - Unrest 00:07
Chronic Fatigue Syndrome is the lowest funded of any major d...
Many of the people that are at NIH and have in the past not believed it's real. - Unrest 00:08
Many of the people that are at NIH and have in the past not ...
I've written two applications to the National Institutes of Health. - Unrest 00:05
I've written two applications to the National Institute...
Both of them were turned down without review. - Unrest 00:05
Both of them were turned down without review.
We have to attempt every door at NIH. - Unrest 00:05
We have to attempt every door at NIH.
If we get shut out from every door then the only recourse we have is go to Congress. - Unrest 00:07
If we get shut out from every door then the only recourse we...
This is what’s called TPN: total peripheral nutrition. - Unrest 00:07
This is what’s called TPN: total peripheral nutrition.
And that’s all he gets for food. - Unrest 00:05
And that’s all he gets for food.
The speech center gets affected. - Unrest 00:05
The speech center gets affected.
It's probably been a year since he's talked. - Unrest 00:05
It's probably been a year since he's talked.
He loved traveling and taking photographs. - Unrest 00:06
He loved traveling and taking photographs.
One day he asked us to take his camera out of his room. - Unrest 00:07
One day he asked us to take his camera out of his room.